Tuesday, April 28, 2015

3rd appointment post-op

   3 weeks down, 10 to go!  Time is going by very quickly... At least it is for me.  My mom is town for the next two weeks as my "babysitter."  It's hard to believe that it has already been 3 weeks.  Part of me wants to say that I wish time would slow down, but at the same time, the other part can't wait to meet Jackson.  While this pregnancy hasn't been easy by any means, I'm loving every second of it. The only thing that would make it better would to somehow be able to get over my anxiety.

   Our appointment went very well and the doctors keep telling us how pleased they are with both Jackson and I in regards to our recovery and how everything is progressing.  You know how some doctors seem to leave certain things out or tell you something in a way that makes you feel better?  I don't get that feeling about either one of our doctors.  I truly believe that they are being completely honest to us and that is very comforting.  As Matt has been telling me, they have nothing to gain from lying/fibbing to us.

   It seems that Jackson has found his comfy spot and doesn't plan on moving from it for any reason.  It was time to get updates on all of his measurements and he is measuring appropriately for 27 weeks.  He weighs approximately 2lbs and 7oz and appears to have my long legs!  While the ultrasound tech still wasn't able to see any movement in Jackson's ankles/feet, I'm still very hopeful.  Overall, we got a great report.  One more week until 28 weeks!

Crystal        
_________________________________________________________________________________
My sweet little man,

   You are currently 27 weeks and getting closer and closer to our first huge milestone.  You measured 2lbs and 7oz from the ultrasound.  You are getting cuter each week.  I absolutely love being able to see you every week.  Because of the surgery, I'm able to do something that I'm sure most moms wish that they were able to do, have weekly ultrasounds.  The doctors are so proud of you, but I think I'm the proudest one of everyone.  I love you so very much.  Continue growing and becoming stronger my little one.

Love always,
Mommy

Tuesday, April 21, 2015

2nd appointment post-op

   Another week down - High five!  Matt's mom is my "babysitter" this week and was excited to see Jackson on the ultrasound.  The last time she saw him was when we went to the Maternal Fetal Medicine doctor for our official diagnosis.  Our drive to Vanderbilt was fairly easy and we didn't really run into any issues with rush hour traffic.

   Alicia went through the same routine and took all the pictures she needed for the doctors to review.  Jackson looked perfect!  She checked to make sure that Jackson was practice breathing and he was.  We watched him practice for awhile.  She used the heat colors to watch him inhale and exhale.  At one point he looked like a dragon when he exhaled.  It was so cool to watch and absolutely amazing.  If I had an ultrasound machine at home, I would never turn it off.

   Dr. Bennett came in during the ultrasound.  She explained that everything on the ultrasound looked great and she was really pleased with how Jackson and I were doing.  She then went on to tell us that Jackson's ventricles increased a little bit more from last week.  However, she explained to us that the increase in his ventricles shows that the closure on his back is tight and not leaking.  Awesome news!  She told us that we may see another increase before Jackson's body finally figures out what to do.  She doesn't seem to be concerned, so I'm not either.

   We met with Emily and she removed the other half of my staples.  Just like the first time, I didn't really have any pain other than a couple of them that got stuck on a scab.  Dr. Carroll came in next and we discussed the ultrasound a little bit more.  Have I mentioned lately how thankful I am for everyone at Vanderbilt Fetal Center? Everyone that we have been in contact with has been so compassionate and caring.  I can't wait until Jackson is here and I can show him off to all of the amazing people that are now in our life.          
  
_________________________________________________________________________________
Baby boy,

   We made it another week - 2 down, 11 more to go.  We can do this!  You are currently 26 weeks and growing.  You are moving more and more and I am loving every minute and every single jab.  I play music everyday for you and you always seem to react to 80's which is my favorite kind of music. It's Dede's turn to stay with us and she's been keeping me company and making sure that I follow the doctor's instructions.  I still have moments of pain, but it's more muscle pain than incision pain.  The pain doesn't matter once I feel you moving around, it magically disappears.  I love you so very much and I can't wait to meet you.  Keep staying strong and growing.  I'm so proud of you little man.      

Love you always,
Mommy

Tuesday, April 14, 2015

1st appointment post-op

   I can't believe that it has been a week since surgery.  I'm sure it feels like forever to Matt, but the time went by very quickly for me.  I have to meet with the doctor before being able to be discharged from the hospital.  As long as everything is looking OK and the doctors feel OK about it, I hope to be able to sleep in my own bed tonight.

   Transport arrived to my room at 7:15 ready to wheel me over to the Children's Hospital for my checkup with the doctor.  I didn't know how much of a hike it was from Maternal Triage to Children's Hospital, but I felt bad for the transport guy who had to be in his mid 60's.  We checked in at the front desk and waited to be called back.  My anxiety level was high and I had so many questions racing through my mind.  Is Jackson OK?  Are the staples in my uterus holding up like they should?  What's going to happen if something isn't right?  I've got to come up with a way to turn my brain off!

   Alicia, the ultrasound tech came and got us and we went into the ultrasound room.  I was excited to be able to see my boy, but just as nervous as well.  Jackson was laying very low and had his back pressed up against me - I immediately thought: please don't let him feel pain.  Due to my incision, Alicia had to be very careful during the ultrasound.  She spent 45 minutes or so getting all the pictures she needed for the doctors.  She wasn't able to get us an updated 3D picture due to Jackson's location and how he was laying.  We were able to hear his heartbeat again and it sounded really strong.  He wasn't moving around very much during the ultrasound, but that was to be expected since he just had major surgery.

   We met with Emily, the nurse practitioner first and she gave us the pictures from surgery.  Wow!  To see pictures of Jackson's defect was surreal.  We had only seen the defect through the ultrasound, but it was both amazing and heartbreaking to see it in "real life."  One day when Jackson is older, I will show him the pictures and explain what we went through to try and provide him a better outcome.

   Dr. Carroll came in next and discussed the ultrasound images.  She showed us a few of them and explained what she saw.  The main one that we looked at was Jackson's ventricles.  She explained that the ventricles went up in size just a little bit, but then assured us that it was normal and was to be expected.  She told us that my amniotic fluid was great and there was NO sign of the staples giving out or there being a leak - Yay!  According to her, the uterine incision was holding up very well as was my incision on the outside.  She gave Emily the OK to remove half of my staples and said that everything was looking great.  She also told us that I could be discharged today which was the cherry on top of our appointment- I'm going home!

   I was extremely nervous about having the staples removed and didn't know what to expect.  Emily came back with a remover kit that had the biggest set of tweezers I've ever seen.  :)  To my surprise, it didn't really hurt to get the staples removed.  Every once in a while there was a sting or a pulling sensation, but it wasn't bad at all.  The last thing we discussed before leaving were my instructions for bed rest.  I was given a packet explaining everything that was expected for the bed rest and several other papers in regards to if something should happen once we get home.  While I'm excited to be able to go home, I'm nervous about it as well.  One week down - 12 more to go!        

Crystal
_________________________________________________________________________________
My dearest Jackson,

   I say it everyday, but I love you.  I'm so proud of you and am already amazed by what you can do.  You are truly amazing and I know that you are going to do something great in your lifetime.  It's been a week since the surgery and you're doing a great job.  It was so sweet watching you on the ultrasound with hiccups.  I look forward to you starting to move more again.  I can feel you every once in a while, but I'm ready for those jabs you like to do.  Continue to grow and become stronger baby boy.  We have 12 more weeks to go.  

Love you always,
Mommy  

Wednesday, April 8, 2015

Hospital Stay

   Hopefully this post doesn't become disorganized, but I'm going to do one post about my stay at Vanderbilt after our surgery.  First, every nurse that I had during my stay was amazing.  I honestly can't imagine having been taken care of better than what I was and I'm extremely grateful.  Second, I'm so thankful for Dr. Bennett, Dr. Carroll, and Dr. Wellons.  Finally, thank you to my family, especially Matt.  He sacrificed so much during my hospital stay and other than going home to take care of the fur babies, he stayed by my side.

   The day after surgery I was moved from labor and delivery to a maternal triage room.  Maternal triage is basically the ER for pregnant women.  The nurse explained that it was a quieter area and didn't require visitors to have a wrist band before being able to see me.  One of the cool features of the room was that we were able to watch LifeFlight come and go from our window.  Matt likes to take pictures of aircraft, so he was happy and took several great pictures during our stay.

   Either recovery from surgery wasn't that bad or I have a much higher pain tolerance that I thought.  I didn't experience too much pain until day 4 going into day 5 when I started having gas pains.  I knew that gas pains weren't any fun, but I must say that they were the worst pains that I've had thus far in my life.  At one point there was nothing that I could do to get comfortable.  I wasn't able to stand, sit, lay down, or walk.  I was in so much pain and so uncomfortable that even the pain medicine that I was given wasn't helping.  Luckily my nurses were great and tried to help in any way that they could.  I tried hot lemon water - fail, I tried mint tea - fail, I even drank prune juice with Miralax in it - fail.  Nothing worked and ultimately it just had to work it's course, it's very slow and painful course.  However, even with all that, I would still have the surgery again if it meant that my son would be given better possibilities in regards to not needing a shunt and having more mobility.

   My family sent me some beautiful flowers and it was so nice having them in the room.  I loved having all the visitors that I did.  It's amazing how lonely it can be when you are away from everyone. I wasn't left alone for very long, but when I was, I missed having someone to talk to and to lean on if I needed it.  I was so thankful to see either Dr. Bennett or Dr. Carroll on a daily basis.  I was able to ask them any questions that I had and they reassured me that everything was going well.

   While my stay was a great experience, it was so nice to be able to finally go home.  There's no place like home and nothing better than your own bed!  I'll be on bed rest until 37 weeks, so I have 13 more weeks to go.  Jackson needs to hang tight and I'm going to do my best to make sure that that happens.  :)        

Crystal      

Tuesday, April 7, 2015

Surgery Day

   I only got a little bit of sleep and 3:30 am came way too early.  I woke up without a problem, but my emotions and nerves started immediately.  Am I doing the right thing?  What if something goes wrong?  So many questions ran through my mind, but when I looked at our last ultrasound picture, I knew deep down this was the right decision.  You, my baby boy, deserve every chance and possibility that this surgery can provide.

   We were running a little bit behind, but we made it to Vanderbilt.  We checked in at labor and delivery and waited until my nurse came to get me.  Matt and I gave hugs and kisses to my parents and Matt's mom because we weren't sure if we would see them again before the surgery and then we were led to my room.  The room was very large, I'm not sure what I was expecting, but it was very nice.  I almost broke down when I saw the baby bed, but I held it together.  The nurse quickly explained the timeline for the morning and then left for me to change.

   The gown was very interesting and Matt and I had a blast trying to figure out how to tie it.  I'm not sure if I ended up with a messed up one, but the strings didn't line up the way that you would think that they would.  I'm sure it would have been priceless watching us with the gown, but somehow Matt tied it just in time for the nurse to come back in and tell us that it didn't need to be tied.  Oh well, it was worth a few laughs.  I got my IV put in and hooked up the fetal monitor to check on Jackson and make sure that I wasn't having any contractions.  I still say that there isn't a sound any better than your baby's heartbeat.  

   I was scheduled to be wheeled back to surgery at 7:30.  I couldn't believe how quickly the time went by.  My parents and Matt's mom were able to come to the room before surgery and we were able to talk.  Before I knew it, all of the doctor's were coming in to say hello and give their speech about their part of the surgery.  My anxiety level was pretty high to start with, but once several doctors were in the room at the same time, it became too much for me to handle.  I had a little bit of a meltdown and asked for my parents and Matt's mom to leave.  I felt absolutely awful about having them leave and wished that I could have held it together for a little bit longer, but they told me afterwards that it was OK and they understood.

   The anesthesiologist came in and gave me some "happy juice" right before I was wheeled away to surgery.  It was so hard to say goodbye to Matt.  I was so scared and I could tell that he was too, but with a kiss, I was taken back to surgery.  I remember the room being fairly large, extremely cold, and very bright.  There were so many people already in the room and they all said hello when I was wheeled in.  I was transferred into another bed and had to sit up on the side so I could get my epidural put in.  A nurse stood in front of me and held on to me while the anesthesiologist went to work.  Thank goodness for the "happy juice."  I felt a little bit of a pinch, but nothing too extreme.  I was told to lay down and to relax.  I could hear a lot of people talking, but I wasn't able to look around, all I could look at was the ceiling.  Next thing I knew, I heard the anesthesiologist tell me to take a few deep breathes and to count down from 10.  "10, 9, 8..." then nothing.

   I woke up in the surgery room listening to the nurse tell me how everything went.  She explained that everything went well and that I was going to be taken back to my room where Matt, Matt's mom, and my parents were waiting.  I remember the ride back to my room and telling myself to wake up every time I tried to doze back off.  I was quickly hooked back up to all of the monitors and remember looking at everyone.  I was given the magical button of pain medicine and told how to use it and how often it would work.  I surprisingly felt very well as far as pain goes.  However, I quickly got an upset stomach, thankfully though, it didn't last very long.  Everyone kept saying how surprised they were that I was so awake and coherent.

   Matt explained that he was kept updated the entire time during surgery.  Ms. Mary called him at each stage to let him know what was going on.  He was called when anesthesia was done, when I was first being opened, when Jackson's surgery started, and then when I was being closed back up.  He told me that Jackson's surgery ended up taking longer than originally planned, but that he did great and that the doctors were really impressed by him.

   The doctors came in for a quick check-up and explained that they would be back tomorrow to discuss the surgery and answer any questions that we may have.  Shortly after that, everyone left with the exception of Matt and I was left to rest.  Well, rest in between my hourly checks by my nurse. :)

Crystal

           

Friday, April 3, 2015

MRI

   We were scheduled for a MRI to get a better look at Jackson's spine.  I've had a few MRIs done in the past for various things, so I thought I knew what to expect for this one; I was mistaken.  I was informed that the MRI would take longer than the other ones that I had in the past due to Jackson.  The person that walked me back went on to tell me that with fetal MRIs they have to "chase" the babies around because most don't like the sounds being emitted.  I laughed at this and explained that if Jackson was going to keep up with his reputation, this should be a fun experience.

   I never had an issue getting MRIs done in the past, but I felt extremely claustrophobic this time.  I kept telling myself to get over it, take a deep breath, and carry on... Don't move, don't move, don't move.  However, Jackson must have missed the memo on keeping completely still.  As soon as the MRI started, Jackson was moving around like crazy.  There were certain sounds that upset him more than the others.  My heart immediately broke - I thought about how scared he must have been.  I realize now that this was more than likely not the case, but still, my sweet boy jumped, kicked, punched, and moved the entire time.

   After the first round, I was informed that they needed to take several more because they weren't able to get the shots they needed due to all of Jackson's movement.  I couldn't help but laugh and ask, "So what makes you think he's going to stay still this time?"  Jackson was still very active the second time, but he wasn't as feisty.  Success!  The doctors got all the pictures they needed and we were free to go.  I wish that I could have seen the pictures.  I'm sure that it's very interesting and a view that I would never see again.

   If anything shows up on the MRI we will learn about it on Monday at our pre-surgery meeting.  I can't believe it, surgery day is just a few days away.  I'm terrified, not for me, but for Jackson.  I pray that he does well.

Crystal